Prosopagnosia
Also called: Face blindness · Developmental prosopagnosia · Congenital prosopagnosia
People with prosopagnosia, or face blindness, find it hard to recognise faces, even those of family and friends. Most have had it all their lives. It can also start after brain damage. Estimates run from about 1 in 100 people to about 1 in 40, depending on how it is tested.
How common
Does this happen to you?
How it works
Prosopagnosia, or face blindness, is trouble recognising faces, even familiar ones. Other vision and thinking usually work normally1.
The acquired form follows brain damage4. Autopsies and scans nearly always show damage in the fusiform gyrus, on the underside of the brain4. The developmental form is lifelong, with no brain injury1.
Many people with it recognise others by voice, hair, clothing, gait, and context14. These habits can become so automatic that people with milder cases do not know how poor their face recognition is4. Many only find out as adults1.
It often runs in families14. In a 2006 study, all 14 people whose families were tested had an affected parent, sibling, or child. The authors said the pattern was consistent with a single dominant gene2. At the other end, super-recognisers are about as good at faces as people with the lifelong form are bad4.
How common it is
A 2006 German study gave 689 pupils and medical students a questionnaire and an interview. It found 2.47%2. It used no face tests, which later researchers criticised3.
A 2023 study gave 3,116 adults a questionnaire and two face tests. Published cut-offs gave rates from 0.13% to 5.42%. The one used most often gave 0.93%. Counting mild cases too gave 3.08%. Poor recognisers formed no separate group, so any cut-off is a choice3.
Try it
- Open the PI20 questionnaire5.
- Rate each of its 20 statements from 1 (strongly disagree) to 5 (strongly agree). Five items are scored in reverse.
- Add up the total, from 20 to 100. The page says 65 or more means a good chance of developmental prosopagnosia5.
A self-check is not a diagnosis. Most research diagnoses also need low scores on computer face tests3.
Is it a problem?
It depends on how strong it is. It is not a sign of low intelligence1. Severe cases can mean not recognising your own partner or child4. Others may read it as a lack of interest, and it can lead to social anxiety1.
Mention it to a doctor if your face recognition was normal and then got worse. A new loss can follow a stroke, a head injury, or a disease such as Alzheimer’s14.
History and culture
The German neurologist Joachim Bodamer named the condition in 1947, from the Greek words for “face” and “not knowing”1.
The neurologist Oliver Sacks had the lifelong form. At times he did not recognise himself in a mirror4. In a 2010 essay he wrote that Jane Goodall had some face blindness, even for chimpanzees, and the painter Chuck Close a severe lifelong form4. Face Blind UK is run by and for people with the condition6.
Sources and further material
- Wikipedia Prosopagnosia
- PubMed First report of prevalence of non-syndromic hereditary prosopagnosia (HPA) Screened 689 pupils and medical students in Münster, Germany, with a questionnaire and an interview. Found 17 with the lifelong form (2.47%). All 14 who allowed family testing had an affected first-degree relative.
- PubMed What is the prevalence of developmental prosopagnosia? An empirical assessment of different diagnostic cutoffs Tested 3,116 adults online. Published cut-offs gave rates from 0.13% to 5.42%. The cut-off used most often gave 0.93%.
- newyorker.com Face-Blind Sacks describes his own lifelong face blindness, how people cope, the brain areas involved, and the cases of Jane Goodall and Chuck Close.
- troublewithfaces.org The Twenty-item prosopagnosia index (PI20) Free online version of the self-report questionnaire by Shah, Gaule, Sowden, Bird and Cook (2015). A printable version with scoring guidance is linked on the page.
- faceblind.org.uk Face Blind UK Run by and for people whose lives are affected by face blindness. Covers both the lifelong form and the form that follows brain injury.
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